Sometimes the only choice is how you face it.

Topic: Death, dying, illness, end of life, acceptance

I watched “Extremis” and “End Game” on Netflix, two non fiction documentaries about what it’s like to be terminally ill and what it’s like to be caregivers (doctors/family) of terminally ill people. They aren’t negative or unpleasant documentaries even though they show real sick people dying in their hospital beds or hooked up to machines with tubes in their bodies, and grieving families. And while they are full of intense emotion that is sure to provoke intense emotion in the viewers, they aren’t even sad. Sadness is for sure one emotion that is involved in the documentaries, even some of the healthcare professional people display sadness and distress at seeing their patients and patients’ families like that, but it’s not the core of them. They remind us that end of life is inevitable, there’s no getting around it. They portray it as not inherently bad and not inherently medical, even when a young person gets sick and dies, it’s just part of living. I think many, even most of us, tend to forget that or at least have difficulty accepting it especially when we are in the situation either struggling with illness ourselves or knowing someone, personally, who is.

I have to have medical testing done to see what is in my neck compressing my jugular vein, it could be serious or minor. Occasionally I experience anxiety and anticipate the intense fear that is coming having to have a scan on my head/neck to see what is inside my body obstructing the vein connected to my heart & brain. Some points it’s literally unbearable just to think of. I found that the documentaries and the acceptance attitude of illness, death, and dying ease my health anxiety. Death & dying are going to happen whether it’s in utero, one day old, 6 months old, 5 years old, 20 years old, 15 years old, 38 years old, 45 years old, 50 years old, 65 years old, 78 years old, or 80+ years old. There’s no point trying to reject it or cling to life when our own time is up. It’s easier to have this philosophy than feel it with emotion and feel it physically. Intellectually we can know it is what it is and has to happen sooner or later, but that doesn’t mean emotionally it’s easy to accept.

While I hold that philosophy also and know it’s the truth, I felt my body physically rejecting the idea that it could be sick or dying in the not very distant future, it recoiled, tensed, and ached at the thought and even felt gripped in panic on occasion, even when my mind said it is what it is. But seeing the scenes in the documentaries of how terminally ill people experience end of life and the compassionate doctors reminding us that life & death are inextricably linked, and the end is coming to us all at one point or another, eased that fear. To see those dying people in their beds and see them through the lens of knowing that will be all of us, even me, one day, eases some of the anxiety. To see them as other and keep hoping against hope that that won’t be us one day only aggravates the anxiety, even exacerbating it to terror level fear, clinging to false hope that we know deep inside is false doesn’t help. Accepting what is eventually coming whether it be tomorrow or in a few decades is so much more bearable. Hope only brings anxiety when it means clinging to something that can never be. Sometimes hope works against us and acceptance is more fitting and in our best interest. It’s realistic for most young & healthy people to hope that won’t be us soon. But it could be. And accepting that it’s coming sooner or later and seeing ourselves in the dying can ease health anxiety or anxiety about the future.

As I watched those sick people of various ages in the documentaries, I found it helpful to see those people as those who got there before me instead of seeing them as people who are experiencing something terrible that I hope I never will. I have a choice to lean into the hope or lean into the acceptance. Each one has their place at different points. One may serve us at one point and the other at a different point depending upon circumstances and various factors and context.

There is no sense of “other” in these documentaries when interacting with dying people, it isn’t like us lucky heathy & them poor sick people and no sense of “those poor unfortunate souls,” there is a constant awareness that later we’ll all be in their place, even the healthy, strong, young ones now taking care of the fragile sick will be laying there in the beds of the sick & dying later. It’s just a knowing. Instead of us & them, it’s only us, in this together all getting our own turn whenever our turn arrives, which it will. Countless others have walked this path before us and countless more will after us. We’re just one in an endless cycle of an infinite amount of others. I found that a combination of my somewhat advanced age, my potential health concern, and these documentaries really made that sink in for me. Sometimes the feeling is a neutral one, and other occasions it’s unpleasant or anxiety provoking. But ultimately, it just is.

Inherently, dying isn’t good or bad and just is a fact of life. The negative connotation is something that society projects onto it. Of course it’s sad to think about not being here anymore and may seem unfair to be diagnosed as terminally ill at 45 years old right in the middle of life or at 20 years old when it hardly even had a chance to begin or at 65 years old before even getting a chance to be old, and it’s devastating for friends & family and others who know and love the sick & dying. But viewing it through that lens of compassionate acceptance (not indifference) and it being inherently inescapable makes it more calming.

And of course dying in very old age is different than dying in youth or middle age of an illness that comes out of the blue and shocks us. But no matter what, we have to face our mortality at one point or another at whatever age it comes to us. This isn’t to say prevention is pointless or that we should reject treatment if it can help extend life with a good quality and isn’t to say fear, grief, devastation surrounding the idea of death, dying, & illness aren’t valid, and not saying it’s not tragic when someone gets sick or dies early, only to say it is ultimately inescapable, and helps to remember that with gentle acceptance.

Also, all patients should have doctors this compassionate and warm.

I don’t think my issue is serious, and my whole body feels healthy and energetic and full of life, I look healthy and have all healthy medical test results other than a seemingly obstructed jugular vein on the left side and a severe headache here & there. But it can be easy on occasion to get carried away with dark thoughts, and once anxiety comes along and latches onto a terrible dark thought, it can be hard to let it go, it can grow and take on a life of its own, making up a big story that there is no real basis for. And it can be hard to live with that story playing over and over and hard to see with the reasonable part of the brain that that story is unlikely and that there’s no true evidence for it. During those moments of distress and panic and anticipation it’s more calming & comforting to think why NOT now instead of trying to reject it and wonder why it has to be now instead of much later. It’s more gentle and easier to bear while leaning into that aspect that it’s coming sooner or later anyway, coming to us all.

What’s the difference if it’s 37 year old me or 87 year old me?

When it’s our turn to go, it’s our turn. 💔❤️

Here is a recent picture of me. If you look closely at my neck, you can see where blood is pooling into the valve of my vein making it protrude. This is the vein that connects to the heart & brain, and when my blood is trying to flow to my heart as it should, it can’t get past something that is blocking it and is backing up into my head. That itself is not necessarily very serious (there are other veins sending blood to my heart), but whatever is causing it could be. Next week I’ll be getting a scan to see inside my body to find the cause then will have to wait for the phone call with the results. That thought is occasionally very distressing. Sometimes it’s deep sadness while other occasions it’s overwhelming fear. But overall, I don’t let it affect my joy each day. I am at a point where I can hope for the best, but I also lean into that acceptance of uncertainty and an eventual end whether it be soon or in a few decades.

It’s the heart that fears the breaking

That never learns to dance.

It’s the dream afraid of waking

That never takes the chance

It’s the one who won’t be taken

Who cannot seem to give

And the soul afraid of dying

That never learns to live ❤️

Death twitches my ear; ‘Live,’ he says… ‘I’m coming’ 🖤

I am wishing love, light, & health to everyone everywhere and hoping you are having a beautiful day or night wherever in the world you are. ❤️

Xoxo Kim 😍