Tag Archive | health

My kidney donation journey update!!! πŸ«˜πŸ’š {June 2023}

Be the reason someone still believes in good people. ❀️

This is me in the park recently! Great news!! Penn kidney transplant team said they are confident I am going to be accepted as a living kidney donor! They said recently during my hours long psych evaluation that my medical/family/individual/health…history is ideal for being a living donor. I am very unlikely to have any surgical related complications or complications relating to only having one kidney. They are not concerned at all about my jugular vein situation (still going to be getting a scan on it though just to be sure, I shared here before that my jugular vein seems to be obstructed/malfunctioning). They are slightly less confident than they would be because of a kidney stone I had in 2007. They said that may put me at elevated risk for currently having a kidney stone that I don’t know about that they could see on the CT scan next week. They said that’s likely not the case but to prepare myself for the possibility of rejection if so. A kidney stone in someone who only has one kidney can result in instant kidney failure. So if I have an asymptomatic stone in there somewhere, I’m out! Let’s hope not because I want to help someone so much!! Hearing this did give me slight anxiety about possibly being rejected, but at least even if it were true, it wouldn’t be a health threat to me. So there’s that. If anything, I thought the vein would be what gets me rejected. Lol That thing has been giving me health anxiety even though I kind of like it πŸ˜πŸ˜†

My 24 hour urine jug that came in the mail as a surprise to me πŸ˜† It’s to see if I have a kidney stone even though they’re also going to do a CT scan
This is the man I’m trying to donate my kidney to! His name is Don, and he is 74 years old and in urgent need of a kidney. He doesn’t have much longer to live. He doesn’t know I exist yet. If I’m healthy enough, the transplant team will call him and tell him he has a kidney donor and that 20+ years will be added to his life and the quality of life, greatly enhanced.

Here is my social media post:

This man needs a kidney transplant and is having great difficulty finding a donor. He doesn’t have much longer and can’t wait for a deceased donor.

Around 200 strangers volunteered to give him one of their own kidneys. They were all rejected by the transplant teams. It’s extremely difficult to be accepted as a living donor. Nearly everyone has something that can disqualify them.

It’s so heartwarming though to think that 200 strangers volunteered. 200 people volunteered to have their organ removed while still alive to save a stranger’s life. And imagine how many more would if they knew about him.

This is not as rare as people may think! And it’s becoming even more common. There are so many caring people out there who would go to any length even for someone they never met and may never meet. Because everyone is someone.

If you think you may be qualified or even not(the transplant team will decide), please try to help! I think they can send the kidney on an airplane if you aren’t close in location. He lives in Pennsylvania, where I am. I am currently being evaluated, and things are looking good. But just in case, it would help if more people would try. πŸ’šπŸ«˜

I hope so much he gets his perfect kidney soon whether mine or someone else’s.

Please share this!!!

https://www.phillyburbs.com/story/news/local/2023/05/04/doylestown-man-search-for-kidney-donor-live-donation-national-kidney-registry-pa-bucks-county/70164192007/?fbclid=IwAR0bK_4GLGtXr5BSFe00vw2dIsjQdqVpPaeDOvCei08ZvBVI8OlZGcxbcQ0

https://www.kidney2don.com/

Here is another social media post of mine that is kind of funny lol :

I was in the park this morning sitting in the grass trying to have one of those zoom-like meetings where we can see people live through the screen. Random dogs kept insisting on coming up to me, and one was πŸ’©ing in back of me πŸ˜† (maybe they sense I’m a pet nanny or maybe just thought I was down for a visit with them because I was in the grass 😍)

Now, I think it’s funny, but when it was all happening I was a tad annoyed that people were all coming around me walking dogs and stuff when I was talking to people through a screen trying to impress them and show them I’m qualified (I was also being asked awkward questions for strangers standing next to me to overhear, like “Have you accepted money for s*x, have you had s*x with someone with an sti, have you had s*x with someone who has used a needle not prescribed to them by their doctor, have you had s*x with someone who has had s*x with someone who…, have you tested positive for Syphilis or Chlamydia…? πŸ˜† Not that these should be taboo topics or anything or that anyone should feel awkward/embarrassed about that stuff itself, just awkward in this context where random strangers and their dogs were basically in a therapy session with me. I couldn’t be home and had nowhere else to go so had to have a three hour psych evaluation in a busy park) . Lol πŸ˜†

(I censor words that can get our accounts suspended on social media or can be trigger words for some people with trauma history)

πŸ’šπŸ«˜

I am so happy and overwhelmed with joy throughout this whole process. I have faith that it will all work out, but even if in the end the transplant team decides it’s best for me not to donate for whatever reason, I will still be so thankful and honored that I made it to this point and will continue to bring awareness to living kidney donation.

The road is long
With many a winding turn
That leads us to who knows where
Who knows where
But I’m strong
Strong enough to carry him
He ain’t heavy, he’s my brother

So on we go
His welfare is my concern
No burden is he to bear
We’ll get there
For I know
He would not encumber me
He ain’t heavy, he’s my brother

This is my favorite version of this song. It is so beautiful. ❀️ Let’s help each other whenever we can and carry each other through. This video here has some v!olent scenes in it, but I’m sure there’s other videos with this song that don’t have scenes like that. The song is about helping others and seeing everyone as our own family.

This is my schedule for medical testing this Friday! I blocked out the numbers in case they don’t want us to share, don’t know what they’re for. ❀️

Living kidney donation is usually a six month long process beginning with the application to volunteer to give one of our kidneys to someone else and ending with the surgery if we are accepted. The six months is full of interviews, paperwork, medical and psychiatric testing. It can seem overwhelming at some points but is well worth it to save a life and enhance the quality. If all goes well my surgery should be in September or October at latest. I haven’t been accepted to donate yet, but things at the moment are looking up!

I’m confident that it will all work out in our favor! πŸ’šπŸ«˜

#wishusluck !!!
#onesenough
#everyoneisfamily
#universallove
#sharingthespare
#sharingthelove
#holdonimcoming

Wishing you love & light & health wherever in the world you are πŸ’š

Xoxo Kim

Sometimes the only choice is…πŸ–€

Sometimes the only choice is how you face it.

Topic: Death, dying, illness, end of life, acceptance

I watched “Extremis” and “End Game” on Netflix, two non fiction documentaries about what it’s like to be terminally ill and what it’s like to be caregivers (doctors/family) of terminally ill people. They aren’t negative or unpleasant documentaries even though they show real sick people dying in their hospital beds or hooked up to machines with tubes in their bodies, and grieving families. And while they are full of intense emotion that is sure to provoke intense emotion in the viewers, they aren’t even sad. Sadness is for sure one emotion that is involved in the documentaries, even some of the healthcare professional people display sadness and distress at seeing their patients and patients’ families like that, but it’s not the core of them. They remind us that end of life is inevitable, there’s no getting around it. They portray it as not inherently bad and not inherently medical, even when a young person gets sick and dies, it’s just part of living. I think many, even most of us, tend to forget that or at least have difficulty accepting it especially when we are in the situation either struggling with illness ourselves or knowing someone, personally, who is.

I have to have medical testing done to see what is in my neck compressing my jugular vein, it could be serious or minor. Occasionally I experience anxiety and anticipate the intense fear that is coming having to have a scan on my head/neck to see what is inside my body obstructing the vein connected to my heart & brain. Some points it’s literally unbearable just to think of. I found that the documentaries and the acceptance attitude of illness, death, and dying ease my health anxiety. Death & dying are going to happen whether it’s in utero, one day old, 6 months old, 5 years old, 20 years old, 15 years old, 38 years old, 45 years old, 50 years old, 65 years old, 78 years old, or 80+ years old. There’s no point trying to reject it or cling to life when our own time is up. It’s easier to have this philosophy than feel it with emotion and feel it physically. Intellectually we can know it is what it is and has to happen sooner or later, but that doesn’t mean emotionally it’s easy to accept.

While I hold that philosophy also and know it’s the truth, I felt my body physically rejecting the idea that it could be sick or dying in the not very distant future, it recoiled, tensed, and ached at the thought and even felt gripped in panic on occasion, even when my mind said it is what it is. But seeing the scenes in the documentaries of how terminally ill people experience end of life and the compassionate doctors reminding us that life & death are inextricably linked, and the end is coming to us all at one point or another, eased that fear. To see those dying people in their beds and see them through the lens of knowing that will be all of us, even me, one day, eases some of the anxiety. To see them as other and keep hoping against hope that that won’t be us one day only aggravates the anxiety, even exacerbating it to terror level fear, clinging to false hope that we know deep inside is false doesn’t help. Accepting what is eventually coming whether it be tomorrow or in a few decades is so much more bearable. Hope only brings anxiety when it means clinging to something that can never be. Sometimes hope works against us and acceptance is more fitting and in our best interest. It’s realistic for most young & healthy people to hope that won’t be us soon. But it could be. And accepting that it’s coming sooner or later and seeing ourselves in the dying can ease health anxiety or anxiety about the future.

As I watched those sick people of various ages in the documentaries, I found it helpful to see those people as those who got there before me instead of seeing them as people who are experiencing something terrible that I hope I never will. I have a choice to lean into the hope or lean into the acceptance. Each one has their place at different points. One may serve us at one point and the other at a different point depending upon circumstances and various factors and context.

There is no sense of “other” in these documentaries when interacting with dying people, it isn’t like us lucky heathy & them poor sick people and no sense of “those poor unfortunate souls,” there is a constant awareness that later we’ll all be in their place, even the healthy, strong, young ones now taking care of the fragile sick will be laying there in the beds of the sick & dying later. It’s just a knowing. Instead of us & them, it’s only us, in this together all getting our own turn whenever our turn arrives, which it will. Countless others have walked this path before us and countless more will after us. We’re just one in an endless cycle of an infinite amount of others. I found that a combination of my somewhat advanced age, my potential health concern, and these documentaries really made that sink in for me. Sometimes the feeling is a neutral one, and other occasions it’s unpleasant or anxiety provoking. But ultimately, it just is.

Inherently, dying isn’t good or bad and just is a fact of life. The negative connotation is something that society projects onto it. Of course it’s sad to think about not being here anymore and may seem unfair to be diagnosed as terminally ill at 45 years old right in the middle of life or at 20 years old when it hardly even had a chance to begin or at 65 years old before even getting a chance to be old, and it’s devastating for friends & family and others who know and love the sick & dying. But viewing it through that lens of compassionate acceptance (not indifference) and it being inherently inescapable makes it more calming.

And of course dying in very old age is different than dying in youth or middle age of an illness that comes out of the blue and shocks us. But no matter what, we have to face our mortality at one point or another at whatever age it comes to us. This isn’t to say prevention is pointless or that we should reject treatment if it can help extend life with a good quality and isn’t to say fear, grief, devastation surrounding the idea of death, dying, & illness aren’t valid, and not saying it’s not tragic when someone gets sick or dies early, only to say it is ultimately inescapable, and helps to remember that with gentle acceptance.

Also, all patients should have doctors this compassionate and warm.

I don’t think my issue is serious, and my whole body feels healthy and energetic and full of life, I look healthy and have all healthy medical test results other than a seemingly obstructed jugular vein on the left side and a severe headache here & there. But it can be easy on occasion to get carried away with dark thoughts, and once anxiety comes along and latches onto a terrible dark thought, it can be hard to let it go, it can grow and take on a life of its own, making up a big story that there is no real basis for. And it can be hard to live with that story playing over and over and hard to see with the reasonable part of the brain that that story is unlikely and that there’s no true evidence for it. During those moments of distress and panic and anticipation it’s more calming & comforting to think why NOT now instead of trying to reject it and wonder why it has to be now instead of much later. It’s more gentle and easier to bear while leaning into that aspect that it’s coming sooner or later anyway, coming to us all.

What’s the difference if it’s 37 year old me or 87 year old me?

When it’s our turn to go, it’s our turn. πŸ’”β€οΈ

Here is a recent picture of me. If you look closely at my neck, you can see where blood is pooling into the valve of my vein making it protrude. This is the vein that connects to the heart & brain, and when my blood is trying to flow to my heart as it should, it can’t get past something that is blocking it and is backing up into my head. That itself is not necessarily very serious (there are other veins sending blood to my heart), but whatever is causing it could be. Next week I’ll be getting a scan to see inside my body to find the cause then will have to wait for the phone call with the results. That thought is occasionally very distressing. Sometimes it’s deep sadness while other occasions it’s overwhelming fear. But overall, I don’t let it affect my joy each day. I am at a point where I can hope for the best, but I also lean into that acceptance of uncertainty and an eventual end whether it be soon or in a few decades.

It’s the heart that fears the breaking

That never learns to dance.

It’s the dream afraid of waking

That never takes the chance

It’s the one who won’t be taken

Who cannot seem to give

And the soul afraid of dying

That never learns to live ❀️

Death twitches my ear; ‘Live,’ he says… ‘I’m coming’ πŸ–€

I am wishing love, light, & health to everyone everywhere and hoping you are having a beautiful day or night wherever in the world you are. ❀️

Xoxo Kim 😍

Just received the BEST news!! πŸ’šπŸ˜πŸ˜πŸ˜

Pretty in pink πŸ’•

For if we give our very best, I know that we will more than pass the test…

(This post was meant for Monday, and I got super busy with work and never posted)

Omg, omg, omg!!! (dramatic, right? 🀣)

I just received the BEST news ever today!!! I’m over the moon!! I can’t help but share!!! I’m celebrating every victory along the way, everything that goes right, everything that gives me any glimmer of hope. And any obstacle or hiccup along the way, I will meet with positivity and hope.

I submitted my application, did some interviews and exams, and I was just accepted into the University of Pennsylvania…………..πŸ˜†
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Kidney Transplant Center program here in Philadelphia to begin further testing to become a living kidney donor to a random stranger!! Ahhh!! πŸ«˜πŸ’š (Lol I never had the grades to be a college student at PENN University πŸ˜† I don’t have the brains, but I do have the kidneys 🀣) It’s something I always wanted to do and am now finally getting around to it. So so many people are in need of a kidney, there is a severe shortage. Everyday SO many people are sick and dying of kidney failure where if just one healthy person steps up and gives, one less person would die/be sick. Imagine if you could literally pull a person out of hospice or stop them right before they have to go into it and give them their life back. Imagine if a person literally on their death bed was told, “nevermind, you have 20+ more years!” A healthy person can do that for someone with end stage kidney failure. There are people dying prematurely who don’t have to be. Living kidney donation can be an intimidating, expensive (we may need health insurance if we don’t already have it, take off work for testing and surgery) long process though so I see why more people don’t. We all help someone in our own ways and show compassion & kindness in a way that resonates with us that may not with others, and this so much resonates with me. If I am lucky enough to be healthy not only enough for myself but enough to share that health with another, I’m all in!

After some preliminary medical testing, they determined I’m healthy enough to begin more extensive medical and psychiatric testing at PENN kidney transplant center. A few days ago they weren’t sure if I would be allowed into the program because in 2007 I had emergency surgery to remove a stone that was obstructing my kidney. Usually when someone has kidney surgery they are not allowed to be a living kidney donor because of possible scarring on the kidney because of the surgery. This isn’t a health concern with two kidneys but could possibly be with just one. They were waiting for the kidney expert to get back to them. The kind of surgery I had, the surgical instrument doesn’t come into contact with the kidney itself. So the nephrologist said I’m in!! Yay!! I knew it deep inside that it would work out! I can feel the stars aligning in our favor. My perfect match is waiting for me! #holdonimcoming

They said if there is no match in Philadelphia, they will send my kidney on an airplane to the person! I never even been on an airplane! But in just a few short months my kidney could be! Makes me giggle lol I can choose someone specifically also who needs a kidney, pretty much whoever I want, just anyone needing a kidney (there are so many, they are not hard to find), and if we aren’t a match but I turn out to be healthy enough, I can donate my kidney to a different stranger, and the person I chose will get a kidney that is more suitable to them through my donation. It’s called a “voucher.” They’ll get the next available kidney that matches them. It usually happens within a few months after the living donor donates to someone else. So my one donation can get two people in need a kidney (one would be mine) who wouldn’t have one without it. This is the way I am going. I’m going to choose a very very sick person who cannot wait for a deceased donor (some people in need of a kidney can wait months to years before death while others cannot), give that person a “voucher” if we aren’t a match but I’m healthy, donate my kidney to a stranger somewhere else, and the currently dying person gets the next available kidney in the nick of time. I already have someone in mind if all goes well. I saw his plead for a kidney on a subway ad. He lives close to Philadelphia. I looked him up, and he doesn’t have much longer to live because his kidney function is so low. Single digits low. He was crying on the news saying it’s a race against time. If he gets a living donor kidney, doctors said he can live another 20+ years, which will be around the end of his natural lifespan if he wasn’t sick. He’s registered with the National Kidney Registry to receive a kidney, and I’m registered to give one (after all my testing). He’s 70 something years old and has a lot more living to do.

Just one obstacle potentially holding up the process is I need health insurance in case they find any serious medical problem during my testing that doesn’t show up on the basic health test I just did or on the off chance I suffer a complication during/just after surgery to remove my kidney, they require health insurance just in case, I got rid of my health insurance years ago because it was expensive and not currently needed. The potential recipient’s health insurance will pay for my surgery because it’s their treatment, but it won’t pay for anything that may go wrong with me because of the surgery because I’m not their patient, and that’s on me! Health insurance can be an expensive, confusing, complicated, lengthy process that can hold up the testing process. But I’m determined! I am currently working on it now, already had a few phone calls and all seems to be going smoothly. I will do WHATEVER it takes to get someone off that wait list/dialysis and add 20+ years to their life, giving them the health that I have. #whateverittakes

I’m in this for the long haul.

Just a little bit of money, little bit of blood and urine, and I can save someone’s whole life! Just a small portion of my body can give someone a whole entire life. It warms me all over just thinking that.

If all goes well, in six months, someone will be getting The Call. The call that says 20+ years are suddenly added to their life and out of the blue they can get off/won’t have to begin dialysis. And in our case, someone doesn’t have to die because I’m a LIVING donor!! WIN-WIN!

My kidney will give them an almost completely normal life with no more sickness or fatigue or pain or dialysis. And I will be just as healthy as I am now with only a few lifelong restrictions (no activity where I can get hit in the back {certain sports} and no Advil/aspirin, and that’s about it) It will take me two-three months to recover before I can go back to work.

I just couldn’t resist sharing my amazing news! I still have to do extensive medical and psychiatric testing. This just means I have been accepted into their program for further evaluation to see if I’m qualified, not actually accepted to donate a kidney just yet. We have a ways to go still for that. But I am qualified to be accepted for further evaluation, I have to pass lots more tests.

They already know I’m not diabetic, no thyroid issues or anything lacking or anything, nothing excessive, and don’t have organ failure of any kind. But they have to check for every kind of common cancer and any abnormalities inside n out of my body. I will be scanned head to toe inside and out! They will also have to take my blood and tissue and find out who it’s a match for.

They also have to do intense psychiatric evaluation, making sure I’m emotionally stable, that I have a valid reason for wanting to donate a kidney (not feeling pressured by anyone or trying to make up for some mistake or something or not hearing voices telling me to give my kidney away lol), that I have appropriate life circumstances, support network, finances, diet…all that good stuff!

Wish us luck!! #wegotthis

I did some light research to see why we have two kidneys but can live being just as healthy and long with one. I think it’s not really known why but believed to be that we have two in case there’s an accident or something and one gets damaged. When one stops working or is no longer present, the other does the work for both, no problem. I know firsthand as my right kidney, unknowingly at first, suddenly stopped working in 2007, and the left one picked up the slack. (There was a stone stuck in it blocking the ureter so no urine could go through to get filtered). It began working again after emergency surgery under general anesthesia.

I can’t wait til my perfect match gets THE CALL! πŸ’šπŸ’šπŸ’š It warms my heart and fills me with joy!

(Also, I was called “young & healthy,” and that made my day! 😁)

#onesenough
#endthewaitlist
#everyoneisfamily
#donatelife

Sending love and light and hugs to all in need/all who desire ❀️ And wishing you a beautiful day or night wherever in the world you are

Xoxo Kim ❀️ πŸ’‹πŸ˜˜

Back at it! πŸ’šπŸ˜ {Second attempt to give my kidney to a random stranger}

https://www.kidneyregistry.org/

https://www.nkdo.org/considering-kidney-donation/

You’ll never see exactly where the road will lead you
And when it comes to love
You gamble when you need to

https://youtu.be/xPZeg2bEBhY

The process has begun!!!

And I couldn’t be happier or more full of joy!

😁😁😁😁😁😁

So happy things are falling into place, and I’m finally trying again!! I’m thrilled!! Just to have this opportunity to at least try.

Shortly before the initial virus outbreak, I began the process of anonymous kidney donation to whoever is next on the waiting list here in Philadelphia or surrounding areas. I never received a follow up phone call or anything then the virus broke out, and everything changed. My financial/work circumstances in the last few years were no longer ideal for having kidney donation surgery if I’m found to be healthy enough. Now three years later, I’m trying again!! Back then I contacted a kidney transplant center directly. Now I’m going through the National Kidney Registry hoping to have better communication than with the last place. And I already do! I now have a mentor who is a living kidney donor herself who will be helping me throughout the process up to the surgery! She has already been SO helpful! I was in the middle of trying to figure out what lab tests I need done soon and was confused and out of nowhere, she texted me introducing herself as my living kidney donor mentor. I never even knew I have one! πŸ˜† And I asked what tests I need done now, and she responded instantly! I just had an interview with her, and it went so well! My basic application for health history was accepted so I can move onto the next step!

I want to share my gift of health with someone in need. I’m going to be getting the initial medical test soon to be sure I’m basically healthy enough (heart, kidneys, thyroid, glucose, no infections…), then a more thorough battery of medical and psychiatric exams if my basic lab results come back perfect.

πŸ’š

If my lab tests are all clear, I’ll be choosing a hospital here in Philadelphia to have extensive medical testing on my whole body in and out and psychiatric testing to make sure I’m emotionally stable enough to handle the gruelling process of extensive medical testing, the possibility of finding out I could have serious health issues myself, and the potential of serious complications during and just after surgery, including death, and where I’ll be having kidney donation surgery if all goes well!! yay!!! They also want to make sure people wanting to donate a kidney are for the right reason (simply to help someone) and not feeling forced or anything associated with mental illness (because only a cray cray person can want our body cut open and a piece of it removed to help a total stranger, right?? 🀣).

The whole process beginning now will probably take around six months. So hopefully all goes well, and one of my kidneys will have a new home in six months giving someone else the gift of health and life that I am so lucky to have. It will not only prolong their life expectancy (possibly moving it to average or near average) but will significantly enhance the quality of their life, making it normal/near normal, enough energy, ability to work and travel, get off dialysis or prevent it, which is hell for people on it but if not, they die soon, they’ll get to do just about everything a healthy person can do with something as small and simple as my kidney!! Since I’m alive, my kidney would be expected to last in their body up to twenty years. If the person is already an older person, the kidney can carry them to their full lifespan. This is what I’m especially hoping for but really don’t mind how old the person is, it’s just good to think my kidney can last the rest of someone’s life instead of eventually having to be thrown in a biohazard can somewhere and being replaced by a new one. But that’s ok, it will help someone for however long it does! Even a few years is good! And even if it doesn’t work at all for some reason, at least I tried! That’s all that matters!

Kidney disease is so common, there are countless people out there on the wait list waiting for someone to die or care and donate while alive. Helping one of them is a true gift and feels like my “calling.”

Three (actually more like five I have been actively planning it and many more that I eventually knew I would try it) years later and still on my mind. So yeah, I think it’s something I must go through with! ❀️

The gift of health is better when shared with another! β™₯️

I’m already very physically active and fit and full of energy myself, I have a mostly healthy diet especially recently when I cut out almost all sugar and sweets (even my beloved iced caramel lattes with extra liquid sugar and extra caramel syrup, that’s not easy! πŸ˜†), have fruits and veggies everyday, no alcohol, smoking or other drugs, not on medication for anything physical or psychiatric, no serious life problems, live at home with family who will help me after the surgery…I do have a couple things that aren’t the best like no health insurance myself. The health insurance of my potential recipient will pay for all my medical/psychiatric exams and my surgery because that’s all considered their treatment. But their insurance won’t pay for anything I need myself like if any complications arise during/after my own surgery. I also had emergency kidney surgery many years ago, but the kidney and me made a full recovery. This probably doesn’t look the best to the kidney donation team. But we’ll see!

This has been my dream for many years since I was young and read a true heartwarming story about a man who donated his kidney to a random stranger shortly after altruistic (or non directed) kidney donation became legal. It felt like home to me, my first feeling was “Oh, of course,” and I just knew it would be me one day giving my kidney to a stranger.

β™₯️β™₯️β™₯οΈπŸ’šπŸ’šπŸ’šβ™»οΈ

#onesenough
#everyoneisfamily
#holdonimcoming
#wishmeluck
#endthewaitlist

I hope you’re having a beautiful day or night wherever in the world you are! Wishing you all the love & health!

Xoxo Kim 🀩

Big @$$ Headache πŸ’š

πŸ–€

“I feel like I been rode hard and hung up wet
Swallowed by a mule and crapped off a cliff
I drank enough whiskey to fill up a lake
Woke up this morning with a big @$$ headache
Y’all I ain’t kidding this son of a b!tch hurts
Where the hell are my pants
Must be with my shirt
I still got my boots on but make no mistake
They can’t help me kick this big @$$ headache” 🀣

I feel every bit of this lol

I’m SO thankful my headache is better today, almost completely, and my appetite for life is back. Being physically ill takes more life out of me than when I’m depressed. No matter how bad my depression gets, even when it’s a full-blown major depressive episode where I can hardly get out of bed, I can usually still feel a very faint, faded, washed out spark of desire, even when it’s almost non existent, it’s still here.

I rarely to never get physically sick, but for the last few months, I seem to get a recurring respiratory virus of some sort, then yesterday I woke up with the worst migraine-like headache. It made me not want anything at all, but I wanted to want stuff. I saw green nail polish I wanted and just couldn’t (I got it today and painted my nails!). I wanted to want coffee and food. My body was so hungry, but I had no emotional desire and couldn’t eat.

I don’t actually have migraine headaches but something that feels like them because I have tmj dysfunction, a disorder in my jaw joint, I had since I was little. It’s chronic, and there’s no known cure or safe treatments that I know of but some very effective stretches and self massages. I’m very used to it; it’s not an issue, just a minor inconvenience. It doesn’t affect my health and is not progressive. It can have severe flare-ups, but I’m used to it, and they aren’t that frequent.

One of the symptoms is headaches of different kinds, including these migraine -like ones. I don’t usually get them. But when I do, they are terrible and almost debilitating. This was one of the worst ones. I am very high functioning no matter what and can push my way through anything. And that’s what I had to do yesterday as we are understaffed, and I can’t just take off work. But all day, I had to stop and rest my head against things. The headaches are gross, a sickly kind of ache. They make just the thought of food or water repulsive. I was dehydrated and extremely hungry all day but couldn’t eat or drink except a few drops of water I forced myself to drink. The hunger and thirst were adding to the extreme discomfort. As soon as I got home, I had to get right into bed. I couldn’t even drink Tylenol tea and couldn’t stand to get a shower (I did today though lol). One of the worst parts is how I wanted food but at the same second did not want it or wanted to want it but just couldn’t, something like that. Anyway, my lack of desire wasn’t natural but being blocked or repressed by something.

The headache was triggered because I laid on my pillow overnight. For years now, I can’t lay on a pillow or I wake up with a debilitating headache. I like to hold the pillow in my arms as I sleep better anyway so don’t mind. The pillow does something to my neck, and it affects my head. I know not to fall asleep on my pillow. But sometimes I wake up on it anyway. I don’t realize in my sleep that I’m putting it under my head. If I wake up on it in the middle of the night, I remove it, and it’s usually good in the morning. But last night when I woke up on it, I was so sleepy, I just said what they hey, and kept it there, falling back asleep. lol BIG mistake!! I woke up SICK. It wasn’t as bad til I got into a car, and the movement pulled on my neck a certain way, which worsened it. I don’t have neck or head pain in general. Just my neck was messed up because of the pillow then the car movement jerked it and ouch! Headache intensified.

They usually only last a day. Usually the next day I wake up with them gone. Today I woke up still with the headache, but it got better and better as the day went on. Thankfully!!! So this is me expressing my gratitude lol

I hope you are having a beautiful day or night wherever in the world you are! ❀️

Xoxo Kim

Just breathe πŸ’™πŸ•‰

Mozart: Canzonetta Sull’aria – YouTube song 🎡

Relaxing songs list – website

How to use 4-7-8 breathing for anxiety – website

Diaphragmatic Breathing – Short youtube video to quickly learn how to breathe most effectively

(Content/possible trigger warning ⚠️: In part of this post, I briefly & lightly mention BDSM, a kink, where people, with consent, may be t**d up, usually in a s*xual context. It’s nothing graphic that I explain but just mentioning something to do with breathing that I learned in a fiction book about BDSM, that helps with meditation. But anyone who has experienced trauma may be triggered even by non graphic things, even by seeing certain words so I may block some things out with *** It’s important to face triggers but only when ready as possible, not by suddenly seeing a post on the internet when not in the frame of mind. Also, some asexual people do not want to encounter anything that has anything to do with s*x even if they weren’t traumatized because it’s icky or repulsive to them[not prudes at all, just grossed out and/or tired of hearing about the s*x constantly when it’s not in someone’s nature to want/crave it].

I’ll put a warning before the mention of the BDSM so any trauma survivors or aces can skip it. And I will put the caution signs ⚠️ ⚠️ ⚠️ ⚠️ at the end so anyone who skips can see where it ends and continue reading.)

“The 4-7-8 breathing technique, also known as ‘relaxing breath,’ involves breathing in for 4 seconds, holding the breath for 7 seconds, and exhaling for 8 seconds.“

This is a very simple and powerful technique to stop anxiety in its tracks. Of course, it may not work for every single person but is effective for many, if not most. For me, it works instantly.

I haven’t been diagnosed with an anxiety disorder and never struggled with general anxiety but I have suffered a six month long battle with debilitating health anxiety in 2019. And in 2015 I lost my close friend unexpectedly to a heart attack and after that have struggled with bouts of anxiety off and on and fear of others I know all of a sudden dying. Every now and again but not frequently, I have this terrible suffocating fear arise that someone I know will die soon or is dying right now or will suffer an illness. It’s something that comes and goes and even though it’s not constant or usually frequent, it is difficult to bear when it does occur. It can feel like it will never end and like I am the only one in the world suffering it. I have also struggled with crippling claustrophobia, which I have conquered on my own as I frequently must get on elevators for work. It was important for me to heal it.

So while I don’t have anxiety as badly or frequently as some people and don’t currently have a disorder, I know what it’s like to be plagued by anxiety sometimes. I believe my experience with health anxiety in 2019 would have been diagnosed as a fullblown disorder if I would have asked for help. It takes extreme strength and courage to battle anxiety. It’s a display of strength and courage to live with anxiety, NOT a sign of weakness or cowardice. People with anxiety are forced to be stronger than people without anxiety have to be, yet often feel we are weak and cowardly if we are anxious and fearful. There is no way we would be surviving it each second if we were weak minded. It takes emotional and physical strength to endure. To me, it’s worse than depression and I have suffered severe depression off and on for years. It’s difficult to imagine the strength of anxiety survivors who live with it regularly. Just six months for me was nearly unbearable.

My anxiety when it arises, more often than not, manifests as physical sensations and emotions as opposed to thoughts. Because of this, mine may be easier to calm down when it does arise than if I had deeply rooted fears and thoughts.

My heart pounds, nearly out of my chest, my breathing becomes shallow, my head spins, and bolts of fear run up and down my body, heart palpitations, and I have this terrible feeling that someone I know is dying, near death, or will soon die. Sometimes it lasts off and on for days, usually just off and on in one day. It tends to be worse at night and early mornings when it is occurring. And sometimes my health anxiety for my own self tries to return and convince me I have cancer. It’s absolutely frightening and life destroying when it’s constant like in 2019. I developed uncontrollable rituals each day, incessantly checking for lumps and marks on my body. I stayed on Google day and night reading about diseases and looking at pictures of diseases I was convinced I had. It was a fullblown obsession. How I survived those six months, I still don’t know.

When it’s out of control, it’s very difficult to meditate or just breathe so best to catch it when a symptom or episode is just beginning, or beginning to worsen, or not quite as intense. When my heart begins to pound or those bolts of fear ripple up and down my body, I do the 4-7-8 breathing technique and instantly my body calms. It’s not a cure, of course, but a good way to get instant relief and if it becomes a habit, it may just be a “cure” for some or at least make anxiety less frequent. It’s just it can be difficult finding the motivation or time to make it an ingrained habit. Or for many, their anxiety is just generally too severe to be able to sit there and breathe, mindfully.

But for me, it does work. When I’m out walking, if I am hit with fear or panic or anxious sensations, I do that breathing technique. Also, I haven’t made it a habit yet but at night/morning, I listen to a peaceful song/music and do the breathing technique even if I am not currently anxious. It’s very pleasant and can prevent anxiety. It instills in me a peaceful sensation all throughout.

One thing to be mindful of is if we meditate only infrequently or haven’t in a while, meditation may bring out more fear or anxiety or anger or sadness or grief…, because we have emotions and responses to everyday life and certain experiences already inside us and often pent up. Meditation will loosen it up and bring it all to the surface/consciousness like a plunger loosening all the contents in a sink or toilet. Lol It may make it seem like meditation or mindfulness is a bad thing or just not for us. But could just be we have to meditate more often. Everyday we experience things and our emotional reactions no matter how serious or not, build up. We get cut off in traffic, we drop things, we spill coffee on our white shirt, we see someone almost get hit by a car running across a street, we hear a loud noise that startles us, our coworker says something that ticks us off, we may remember someone dying years ago and feel current distress or sadness about it…all of our emotional reactions to these things stay inside us even if we quickly forget them. Then meditation brings it all out later and we may feel the stress, anger, fear for a while after a meditation session but it’s actually a good thing as all those emotions need a release.

Shoulder blade squeeze

As I mention when promoting breathing exercises, I suggest people who are physically able to, as long as it’s safe for them, do the shoulder blade exercise at the beginning to open up the airways and make breathing easier and deeper.

⚠️ ⚠️ ⚠️ Content Warning ⚠️⚠️ ⚠️

Some years ago, I read a fiction legal thriller series of books by Stephen Penner, for fun and learned an invaluable life tip. In one of the books, the medical examiner, character, Dr. Kat Anderson, explained that putting our arms back like that opens the chest cavity and helps us breathe better. In the book a woman was accidentally killed by her man while they were engaging in BDSM, a kink where they tie each other up and stuff; it looks and sounds violent but is usually safe and is one hundred percent consensual.

The characters were hooking up and he tied her arms back with her consent and he accidentally killed her. The doctor explained how she would have died sooner if not for her arms being tied back like that. The reason she died is he choked her (with her consent) and since her arms were back, she was breathing better so lived longer. I realized I can do that before meditations to make me breathe more deeply and just randomly throughout the day and then a professional fitness trainer told me the same thing, to do that all day, everyday. It aids in our breathing.

⚠️ ⚠️ ⚠️END⚠️ ⚠️ ⚠️

So put your arms straight at your sides then lift them to your waist, bend the elbows and squeeze shoulder blades for five seconds then loosen for a few seconds then do the same again however many sessions you see fit. Don’t shrug your shoulders while squeezing the shoulder blades. That isn’t necessary and may not be safe or effective.

This is only for people who can safely do this, don’t have pain or physical limitations, have arms…I understand this isn’t for everyone. I think the average person can do this though. Remember for counting seconds, 1 Mississippi, 2 Mississippi, 3 Mississippi….I learned this is elementary school just saying one two three is less than a second so put the Mississippi after and it’s closest to one second. 😁

This song in the YouTube video above, Mozart: Canzonetta Sull’aria, is one of my favorite ones to meditate to. It’s beautiful and peaceful and scientifically shown to be one of the most relaxing songs on Earth. Weightless – ten hour version or Weightless – eight minutes version is the actual most relaxing (scientifically proven) and I love that one too. But this one is a bit too relaxing and can make us sleepy or go to sleep. I’m not always trying to go to sleep after meditation. Sometimes I’m meditating in the morning or afternoon or out walking or before work and Weightless isn’t a good idea those occasions. But it’s great right before sleep or if it doesn’t matter if we are sleepy.

When breathing, only the abdomen should move, not the chest. And breathing should always be inhaling through the nose with the stomach expanding and exhaling through the mouth with stomach deflating. It’s called diaphragmatic breathing and does matter. It’s the proper way to breathe, the most healthy, but most of us don’t breathe that way and our breathing is shallow. Diaphragmatic breathing is best for coping with pain and anxiety and just the healthiest in all of life.

Remember to breathe as slowly and deeply as possible, especially breathing out. It takes practice. And remember to gently bring your wandering mind back to breath. That takes practice too. Everyone without exception will have a wandering mind, even those experienced with meditation. It’s just the nature of the human mind. It’s not a flaw or something worthy of self criticism. It’s just important to catch it as best as we can because before we know it our allotted meditation time is over and was taken up daydreaming of our lunch later, or some task at work tomorrow, or stores we have to visit. Again, not a flaw! And not an indication that we aren’t good at mediation. It happens to everyone who tries to meditate or do breathwork. It’s just important to get into the habit of catching it as much as possible for mediation to be most effective.

Anyone who tries meditation or breathwork is successful. Just taking that step to better our own self and be better for those around us is an accomplishment.

Hugs, love, inner peace, and light to all! πŸ’—

Xoxo Kim

National Doctors’ Dayβ€πŸ’š

Happy National Doctors’ Day to all the Earth angels all around the globe!! Thank you, thank you, thank you!! Thank you for the health, hope, and healing. For the possibility and potential. Not an easy job to have and I’m thankful there are people who have what it takes! I have always been in awe of medicine and doctors and the things that can be done to help and save lives. I trust & love you! I’m wishing you all the love, health, safety, and strength today and everyday! Hugs & love, xoxo❀

~Kim

Look for the good {gratitude}❀

One way to practice gratitude that is different than an ordinary gratitude list is to write a list of things that seem wrong, difficult, challenging, bad….then put a positive spin on them or make a conscious decision to see the good or create the good in them.
Here’s mine.

1.) My hemoglobin/iron level has been dropping consistently for the last six months for a reason unknown (Scary!) but I’m thankful it’s still at a safe level even though it’s considered to be at an anemic level now. It only drops slightly and only just now became anemic but it shouldn’t be dropping at all, consistently. This is an opportunity for me to get even healthier now, healthier diet, work on less stress factors, more consistent meditation, self care…This should bring it back up as long as there’s no underlying issue/illness making it drop. Hopefully it’s just that I need some dietary/lifestyle changes. I work/walk/exercise excessively, to extreme levels, and under-eat(My body weight is healthy though). I don’t have an eating disorder. And it’s not a conscious decision; it happened over time and is not something I wanted to happen. It just did. But now my body is demanding I rest and make healthier decisions in other ways. And that’s a good thing!

2.) Because of this I cannot donate blood and I’m a regular blood donor. Very disappointing. The Red Cross wont let me because it’s not safe for me to lose even a small amount of blood even though it’s safe for any recipient to get my blood, but at least I have the desire to help and try to. Sometimes that just has to be enough! And another good thing…they still let me have the free snacks!πŸ˜‚

3.) I have these rainshoes that cut my skin and are very uncomfortable. But so is walking around with soaked shoes & socks all day. So it’s either severe blisters or soaked, yucky shoes & socks when it rains. Both are sucky. But at least my body has the ability to heal the cuts. It’s a reminder to be thankful that it functions the way it should. I choose the soaked shoes n socks. Wet feet can dry very quickly while cuts take longer to heal and can potentially get infected. Also, I probably shouldnt be losing blood with my low hemoglobin thing going on. I tried different kinds of rainshoes and none work out.
4.) I have been struggling with very severe, absolutely debilitating health anxiety (which I never had before) for the last two months and this was before I found out about my hemoglobin issue so imagine my horror when I found this out!! That’s all I need is to hear this now! I have been convinced for two months that I’m about to die (In just a month I was convinced I had over ten different kinds of rare cancer and Google had me dead in less than a year – it may be in your best interest to stay off google if you are struggling with health anxiety! For example, I had some little thing I cant even remember now and put it in google just to check. What’s the first thing that comes up? Pancreatic cancer. Thoroughly freaked me out until Im in a near panic. I was never like this!!) and now this(low hemoglobin can be a result of cancer)! But my terrible anxiety inspired me to do something and I found a beautiful meditation that is so inspiring and full of love. So soothing, calming, peaceful, serene, healing. Stunning. Kuan Yin – Om Mani Padme Hum

It’s a short meditation just over six minutes long. We can put it on replay to meditate longer or just play it as soothing background music while doing other things.

These are a few things that are not good but either because of them I found something good or I was able to see or create the good in them. Try it! We can never go wrong with that! No matter how seemingly serious or trivial, list it and look for the positive aspect. This gets our mind into the habit of being thankful or deepens our gratitude if we’re already frequently grateful. It can be uplifting to list good things but may be helpful in another way to list “bad” things then the good in those bad things.

I hope you are having a beautiful day or night wherever in the world you are! Hugs to you if you are struggling with health anxiety or any health issues. Meditation really helps me, even just a few minutes of conscious breathing in the morning and/or at night is powerful.❀

Much love, light, & inner peace,

Kim

Hey ’19!πŸŽ‰

(This is me yesterday!❀)

Hey Nineteen – Steely Dan
It’s hard times befallen soul survivors
She thinks I’m crazy but I’m just growing old
Hey nineteen
(no we got nothing in common) We can’t dance together
(no we can’t talk at all)
Please take me along when you slide on down

Happy New Year!

This is a fun song I always loved to listen to! The people singing are like my age (30 something years old I think) and they feel old upon meeting a nineteen year old girl. Even though I’m their age, I feel more like the nineteen year old! Lol I look and feel, act, and just seem much younger than my actual age. What makes us “old” or “young” and happy or not is our attitude, not our chronological age. I frequently hear/see people saying and writing that when we get to be thirty years old, our body and other things start to go downhill. It’s only true if we let it be. I’m well over 30 years old and am anything but old or going downhill. My body is strong and healthy and extremely energetic. I never get tired, except a healthy/normal tired at night, and I work seven days a week, sometimes 24 hours or nearly 24 hours non-stop!

If we have a lighthearted attitude and don’t care about age along with keeping our body as healthy as possible (physical exercise, meditation, healthy food, sleep/rest when needed…), age does not matter. When we’re old/middle aged, can we still have fun with friends and family? Yes! Can we still taste food? Yes! Can we still breathe? Yes! Can we have fun watching movies, going out, reading, doing whatever activites we like to do? Yes! Can we still exercise? Yes! Can we still work? Yes! Does our thinking process still work? Yes! Can we go out on romantic dates? Yes! Dress in sexy clothes? Yes! Try new things? Yes! Go on vacation? Yes! Change jobs! Yes! Go to school? Yes! Hook up with random strangers? Yes! (Lol) Find true love or keep true love? Yes! Help those in need? Yes!

So why does age matter? We can do all the same things as when we were young even if it’s not socially acceptable (certain fashion choices are often considered to be for young people, for example, but so what?).

“Tired” is often the default response when asked how we are. Everywhere I go, I hear it. People who are much younger than I am are frequently complaining about being an adult and therefore so tired.

And I’m frequently seeing memes about it on social media, about how being an adult equals being tired.

(So accurate these days!! Not my photo!)

Frequently being tired or fatigued is a result of less than perfect health, being overworked, or being unhappy, stressed, distressed, imbalanced in some way…healthy, happy, balanced adults are not constantly fatigued or tired. This isn’t to say we are definitely tired if we’re stressed or something but that if we are frequently tired, something is draining us so fix it.

It’s not a good thing to just accept it as being part of adulthood.

I know a cute & sweet 87 year old lady, named Mary, who is very happy, healthy, and physically active. She frequently brags about her age and how healthy she is!😍

She’s an animal lover, very Liberal politically but loves those with opposing views.

She goes shopping, does not have much money, is single, goes to all different events, does volunteer work, decorates for holidays, cooks, hosts celebrations at her house for holidays, ballgames, her and her daughter welcome everyone, even strangers so no one has to be alone on “special” occasions…and she was even asked on a date recently by a younger man! (She said no because he is a bit younger and she doesnt know him well but at 87 years old she is still turning the heads of younger men! She also said the world is full of idiots so we should just stay single! πŸ˜‚ )

Age is no excuse to be unhappy, to be always tired, to be unhealthy, to be trudging along through this life dragging and complaining!

Whatever we can do as a younger person, we can do now!

And this goes for anything we want but do not have. Without it, we can still have fun, still go out, still dress up, still love….

It can be painful to want what we do not have (to be younger, friends, kids, a romantic relationship, fulfilling job, our own house, a school degree, more money, better health….) but we do not need those things to be happy. It’s true, some of those things would bring us a kind of happiness we won’t have without them but it doesn’t mean we can’t be ultumately happy or just as happy in general without.

It’s all about the attitude. Stop thinking we’re old and we won’t be!

I’m 30 something years old, have a job I love but not a job that brings a lot of money, I’m in financial debt, do not live on my own, don’t have good in-person friends, am single, don’t have a family of my own….but am still generally happy and never tired or feeling old! It’s a good reminder for me also because sometimes I let myself get unhappy about not having lots of friends to do stuff with when most people do. I remind myself I can still have fun and be happy anyway and I can love myself even if no one else does. ❀ I do have a couple friends but not good ones and one I never see. But that’s ok!

Focus on the good, keep the body well nourished, be active, physically, do some mindfulness exercises even if for just five minutes a day, help others, don’t set unrealistic goals or have unrealistic expectations, lose the life timeline where certain things “should” be done by a certain age, stop the negative comparisons with others, say no to perfectionism, try new things, fun hobbies, get rid of the “I should be but I’m not” mentality, protect our energy….and we will be happy, energetic, and young no matter our actual age!

Much love,

Kim ❀

Living for the simple moments {beauty all around}

image

“Underneath your blackest emotions,
far above your brightest wishes,
stands a world for you to hold” ~Samael

I was watching videos about children who suffer with severe mental illnesses like schizophrenia. It’s currently incurable and is a lifelong struggle for them. They suffer immensely and so do their families and those close to them who do the best they can to cope and help them cope.
They suffer hallucinations and delusions, some pleasant and some not pleasant.
They talk to things no one else can see.
Unlike some children, these aren’t imaginary friends playfully made up for fun, they are hallucinations the brain makes up as a result of an imbalance in its chemistry. It doesn’t function the way most people’s brains function. They literally see, hear, feel things that aren’t there for everyone else and often, they believe they’re real. And to them they are very real.

You can tell a hallucinating person that what that person is seeing, hearing, or feeling isn’t really there and it’s possible the person will know it’s not really there but that knowledge will not make the hallucinations any less real.

That can be an additional stress on someone. Knowing what the person is seeing, hearing, feeling isn’t really there but not being able to make it go away, even feeling the need to respond to certain hallucinations knowing they’re not really there. It can be so frustrating.

Sometimes their mental illnesses provoke some of them to act violently against other people not because they’re bad people but because their brains don’t function properly. Not everyone with a mental illness is violent as a result but some can be. Most aren’t.
In other ways they can be just like other little kids. They like to play, go outside, run around, swing, laugh….

People with mental illnesses, children and adults alike, are a whole person underneath, a person separate than the illness. But sometimes the sickness seems to take over.

It’s a heartbreaking struggle.

One of the most inspiring parts of one of the videos I watched is when a little girl’s dad said he has only two hopes for his little girl. One that she stays alive and two that moments of happiness will always find her throughout her days even when most parts of her days are an agonizing battle, he hopes she will always find something to be happy about in the midst of her pain and struggle.

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This can be viewed in a more negative light like that it’s too bad that all someone has is little moments throughout the day because everything else is just so bad.
Or it can be viewed in a positive light that there are always moments we can embrace to be inspired and joyful, single moments scattered throughout each day that we have, to seize and hold on for. No matter how much pain we’re in.

It’s a beautiful coping mechanism. Mental illness and physical illness is heartbreaking and devastating but as long as we stay alive and hold onto any little bit of happiness or joy or anything that can make us smile or giggle about, we can make it.

We can’t always hope to be cured or to be generally recovered or to go in remission right now. We can’t always hope that pain will end right now. Some things just won’t be cured and some people will have to struggle most days or everyday just to survive and do basic things. Some people will have severe flare ups every now and again, of an illness physical or emotional that will feel near impossible to cope with.
And even temporary pain or struggles that we know will end eventually, can just seem so overwhelming, so absolutely unbearable.

But as long as we live and can find those glimpses of magic hidden in the midst of the pain and darkness, we can have something to hold, something to hope for, something that encourages us to keep going, to get out of bed, to move.

The reflection of the sun on windows and signs and water, the blueness of the sky, white fluffy clouds, a steaming cup of hot tea, a funny movie, the depth of inspiration a beautiful song can bring us, a poem, friends, family, animals, photography, books, the vibrant colors all around, random acts of kindness, strangers, hot fudge sundaes, peanut butter, the gentle flapping of butterfly wings, helping someone, funny jokes….whatever touches you in a deep place.

These things, the simple beauty all around, are always beautiful no matter what our situation is but for some people with certain illnesses or disabilities or in certain situations, they are all we have at the moment. Just moments of simple beauty and joys. Sometimes it’s really all we can hope for, to have solitary moments of joy or happiness or some small sense of pleasure in the midst of our darkness.

And it can be enough.

I know this because when my depression would be flaring up for hours, days, weeks, months, whether it’s a full blown episode or just some symptoms, here and there, sometimes all I could do to stay alive, to find the motivation, the inspiration, the courage, and strength to carry on, was grasp onto all the single happy or joyous moments throughout every day of my darkness & despair. Focus on the goodness that still does exist until it would end and I would be happy again. I had this since 13 years old.

Having depression or any mental illness or pain can feel like a different world than where everyone else is. It’s like another place, another time, another world. To know we have this dark place we can slip into.
To have random suicidal thoughts and urges and depression that can appear suddenly for seemingly no reason.

People say there’s no such thing as “normal.”
And that it’s good to be different and “crazy” and unique.
But in some cases there really is such a thing as “normal.” People who always want to live, those who don’t have to battle random or frequent suicidal urges, ones who don’t have unpleasant images and thoughts flashing across their brains, people who don’t have their whole body crushed in an invisible heaviness where they can’t even stand up straight, ones without panic attacks and flashbacks and frequent anxiety, food obsessions, seriously disordered eating habits ….(i don’t have anxiety or panic attacks or body image issues/eating disorders and never have but many, many people do and it’s a serious problem that is very painful for them)
This is normal to not have all this.
And for people who have any of it, it can be a difficult struggle to try to be regular.
I know people without health conditions like this may not be “normal” in other ways but in this context they are.
And it’s not good to try to force ourselves to be society’s or someone else’s idea of normal while not being true to ourselves.
But that’s not what I’m talking about here.
Yes it’s good to be “unique” but not when unique means battling violent urges to take myself out for days/weeks/months.
And “crazy” is good when it’s all fun and games and playing, acting funny and silly but it’s not good when “crazy” is a true illness.
It’s not always easy to handle and it provokes pain in me, even when I’m not depressed sometimes. Just thinking about it.
Not always. For the most part I feel and am normal. But it can be a struggle sometimes when depression flares up.

The psychological consequences of having these condition, and for some, even when they are not currently acting up, are profound and may have to find ways to cope with the pain and struggles and the very fact of having them when they are someone with a mental disorder. I don’t mind and can handle it.

I know I’m not a victim. That’s why I’m posting this, because I have found a way to be empowered and I hope it helps someone else. This life is still a sweet blessing. Just because we have bad things and painful things happen to us, doesn’t mean we are victims.

“We live in a wonderful world that is full of beauty, charm and adventure. There is no end to the adventures that we can have if only we seek them with our eyes open.” ~Jawaharlal Nehru

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I’m alive. And as long as that remains true, there is hope. Even when I can’t feel it.

Sometimes the simple things are lifesavers, crucial parts of my coping mechanisms.
They are all there is.

I honor all the brave families and other people for sharing their stories, for sharing their pain and struggles with the world. Mental illness, medication, mental illness in children, specific ways of coping, treatment…are all very controversial. People disagree on the nature of some illnesses, whether or not they really exist, if certain treatments are ethical, the way people handle these illnesses and so much more. Anyone who shares a story like this that reaches a large audience, on blogs, YouTube, tv…, is bound to receive criticism of all kinds, some intended to be constructive, other critics intending to be malicious and inflict pain or anger upon those sharing their story.
There will always be loving supporters and those who just want to hurt.
Anyone who shares their story is brave and strong and deserves love and compassion whether or not we agree with everything they do or say or believe.
The people who share their pain with the world do the best they can the best they know how.
No one chooses to be mentally ill. We have to take the life we were gifted with, healthy or not, and do the best we can with it, bloom where we’re planted, create a firm, strong foundation with everything we know, everything we experience, everything that is thrown at us.

“Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it.” ~Anne De Lenclos

Mental illness, pain, being suicidal…none of these are choices but acting on them is often a choice. Acting negatively or acting positively. Giving in and giving up or finding it in us to keep going with everything we have. We have the choice to do something to better ourselves, to hold on, to inspire, bring hope, consolation, encouragement, and understanding to others.

When I am depressed, I choose to hold on, to keep going, to inspire myself and anyone else I can along the way.

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And I hope you will always do the same whatever your situation is. And if you need reminders every now and again, look for them. Take photos of happy things, write positive quotes and affirmations in a book so you can always look at them when you need inspiration, always remember words, books, things that have helped you and let them continue to help you. Remember an occasion when you were happy and filled with joy and hope and full of life and know you have it in you to feel that way again. If you can’t remember when you last felt that way, then know there’s always hope as long as you’re alive. The world is full of pain but it’s also full of hope, healing, happiness, love, and possibility. Endless possibilities.

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“I choose to FIGHT BACK! I choose to RISE, not fall! I choose to LIVE, not die! And I know, I know that what’s within me is also WITHIN YOU.” (Mayor Pappas, “City Hall” movie quote)

Xoxo Kim